Validating a model of chronic illness and family caregiving

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Caregivers express difficulty in gauging the behavior of cognitively impaired patients. The psychological and physical health of family members caring for an elderly person with dementia.

Healthcare providers support caregivers by supplying information and listening to caregivers' stories.

Caregiver burden and depressive symptoms: Analysis of common outcomes in caregivers of elderly patients.

International Journal of Palliative Nursing, 10(2), 67-75.

Methodologic Approach: Data collection involved a tape-recorded dialogue with caregivers using Story Theory. Appraisal and caregiving burden in family members caring for patients receiving chemotherapy.

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Research Approach: Qualitative study employing Parse's descriptive exploratory method. Commitment is sustained through enduring patient cognitive and behavioral decline. Expectations are based on a realistic understanding of the disease trajectory and known mortality, and allow caregivers to hope for the ability to manage declining patients. Family care of frail elderly people has been linked to significant negative consequences for caregivers' mental health.Although outcome variables such as burden and depression have been widely analyzed in this population, guilt, an emotion frequently observed in caregivers, has not received sufficient attention in the research literature.

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